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Can Anyone Tell Me The Difference Between Auto Imune Heamalitic Warm . Mine Is Cold. Carole Ryder Cheshire England
Mine is cold also , you must keep warm , when your cold the nastys attack , ours is the rarer one
What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃
Tbh for holidays I like to buy fancier treats like raspberry and mango, payayas or things that are super healthy but expensive to have it daily. I would like to have a mix of fancier nuts mix like… read more
Do You Follow A Specific Diet To Help With AIHA?
I eat a really carefully controlled keto diet that is the only way I've found to boost my energy and get enough iron and other nutrients. I don't mean the faddy keto rubbish, I mean reducing carbs and… read more
What Exercise Regime Works Best For You?
I enjoy weight training but after each IV iron &/blood transfusion I only get a window of about 12 weeks before my HB, iron and ferritin drop too low do even walking up and down stairs let alone lifting. Looking for something to bridge the gap so I don't fall back to square one again every time.
Thanks so much Lynda! I didn't think of Tai Chi! I can't do yoga bc of hypermobility / EDS but I think Tai Chi might be fine, thankyou! I love chair workouts, the chair weights ones a a real blessing… read more
Which AIHA Symptom Surprised You The Most?
I have experienced this, but have had like hit flashes.
What Are Your Top Tips For Dealing With AIHA In The Heat?
Living in QLD Australia. Sub tropical climate so 30C in summer with humidity means I can feel very unwell. So, I have got my aircon up and running and regularly serviced and use it in the middle of… read more
Are You Frustrated With Finding Effective Treatments For AIHA?
I tired B12 for two weeks and apparently makes things worse, I think the autoantibodies feed themselves on this B12 and my HG levels drop fast. I stopped after two weeks. The same is true for vitamin… read more
I'm Lost
Guys i'm lost. I have my appointment with the haematologist after the blood test. Everything started to improve DHL is better, bilirrubin as well, hemoglobin now is 10, b12 also improving since I'm gettint treatment. Levels of iron has dropped a lot, from 87 to 8. Levels of folic acid have dropped as well. The thing is they say I have no aiha, and the diagnosis is: pernicious anemia. Which is caused by an antibody that attacks the parietal cells of the stomach, they're necessary to metabolise… read more
No
I only got the camera down my mouth and they even gave me pics of tests. This Atrophic gastritis. What is it exactly? Cause i feel all the pills we are taking, that’s what is making me nauseous… read more
What Supplements Do You Recommend Please
Hi my husband was diagnosed September 2022 on his second round of Rituximab what supplements do you advice please he is currently on vitamin D and calcium
I agree with Art. I'm cramming down the 5 google said are take. Iron, B-12, Folate, Vit E & Vit D3. No zinc or vision supplement although good idea. I also take potassium and some multi vitamin power… read more
My Hb Went Down Today At Blood Work From 9.9 To 9.5 And I Am Just Worried. Is This Concerning?
I have had bloodwork done from two different doctors at the same appointment. Naturally some requested tests from each doctor were the same. The results from those same tests were different numbers… read more
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