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For How Long Have You Been Living With AIHA?
Wow Bia, such an experience. I hope you're a little better now. I'm not still on treatment, and my Hb is 8 last time they checked. I went today to visit another doctor for a second opinion and she… read more
AIHA Diagnosed, Not On Treatment Yet. I Need Some Answers From People Who Has Been Through This.
Hello everyone. I've just been diagnosed with AIHA. I also have b12 deficit, which it seems is not linked. I'm already on treatment with b12. My haematologist sent me to get a tomography done. Already done. Still I won't see her until 11th March. I have extensive blood test on the 7th. Lots of autoantobodies, serology, tumoral markers and so. The tomography shows spleen enlarged and cervical adenopathy. Everything I read it says treatment for AIHA must be instaured immediately. I was diagnosed… read more
Yes please updates☹️
AIHA And PVC (Premature Ventricular Contraction) Activity
Does anyone have experience or data on how AIHA may generate or cause Premature Ventricular Contraction (PVC)? My % rate of PVCs has climbed up between 9% and 15%.
Hi. I don’t know this.
Is Anyone Here Aware Of The Initial Cause/reason Of The Onset Of Your AIHA?
I had Aplastic anemia over 20 years ago. But before this diagnosis, I had covid and later, the only time I have ever had pneumonia. Then we had huge stressor and stayed in a tiny home at high… read more
Haptoglobin Levels
I had 4 doses of Rituximab 6 months ago. Now my blood work still shows decreased haptoglobin levels. Was/is anyone experiencing something similar? How long did it take for your haptoglobin to reach normal levels? Just so worried that this is a sign of ongoing hemolysis…
What Lessons From Your AIHA Experience Are You Applying In 2024?
Walk frequently in that day in an AIHA episode even if it s only 50m. Listen to your body and work with your GP or specialist and do not be afraid to ask questions about how to live with the… read more
How Does The Cold Affect Your AIHA?
I looked up and norvir is used as a strong HIV medication and is dangerous to take it just like that. Other type of convertase inhibitors I found are used for high cholesterol patients. In case anyone… read more
What AIHA Symptoms Keep You Up At Night?
My itch was Hives and it went right away.Keep your skin clean.
What's On Your Holiday Wish List That Could Improve Your Life With AIHA?
I did not like my health problems spread out on the internet! Take me off everything that you are spreading.
Anyone Diagnosed After Colon Surgery? I Developed Ulcerative Colitis After The Surgery And I Read That Can Cause Aiha.
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