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I Need A Left Hip Replacement And I Have Been On Sutimlimab Treatment For Over A Year..will Surgery And Recovery Be Normal? I Am 82 Yrs Old
What Advice Are You Grateful To Share With Others About AIHA?
regular blood tests to keep monitoring blood oxygen levels etc... Healthy eating with plenty of greens
Before Diagnosis, Did Any Of You Experience Dry Mouth Every Night And Notice A Bad Odor That Others Didn't Notice?
I wonder if it's a symptom of the disease.
Hip Replacement With AIHA
Can Anyone Tell Me The Difference Between Auto Imune Heamalitic Warm . Mine Is Cold. Carole Ryder Cheshire England
Mine is also cold and I have to keep warm. The cold weather makes you feel unwell
What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃
Tbh for holidays I like to buy fancier treats like raspberry and mango, payayas or things that are super healthy but expensive to have it daily. I would like to have a mix of fancier nuts mix like… read more
Do You Follow A Specific Diet To Help With AIHA?
I was fine until the cold weather started and I caught a heavy cold. My last reading showed improvement although my thyroxine levels have dropped so more blood tests and I continue to take folic acid… read more
What Exercise Regime Works Best For You?
I enjoy weight training but after each IV iron &/blood transfusion I only get a window of about 12 weeks before my HB, iron and ferritin drop too low do even walking up and down stairs let alone lifting. Looking for something to bridge the gap so I don't fall back to square one again every time.
Thanks so much Lynda! I didn't think of Tai Chi! I can't do yoga bc of hypermobility / EDS but I think Tai Chi might be fine, thankyou! I love chair workouts, the chair weights ones a a real blessing… read more
Which AIHA Symptom Surprised You The Most?
I have experienced this, but have had like hit flashes.
What Are Your Top Tips For Dealing With AIHA In The Heat?
Living in QLD Australia. Sub tropical climate so 30C in summer with humidity means I can feel very unwell. So, I have got my aircon up and running and regularly serviced and use it in the middle of… read more
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