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Questions & Answers

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Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Follow A Specific Diet To Help With AIHA?

By A myAIHAteam Member 8 answers
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I Was Diagnosed With Warm Aiha Earlier This Year. Do You Find That Hot Weather Makes Your Feel Worse?

By A myAIHAteam Member 5 answers
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What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A myAIHAteam Member 5 answers
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Are You Frustrated With Finding Effective Treatments For AIHA?

By A myAIHAteam Member 3 answers
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124 questions

I Need A Left Hip Replacement And I Have Been On Sutimlimab Treatment For Over A Year..will Surgery And Recovery Be Normal? I Am 82 Yrs Old

A myAIHAteam Member asked a question 💭

What Advice Are You Grateful To Share With Others About AIHA?

A myAIHAteam Member asked a question 💭
San Francisco, CA
A myAIHAteam Member

regular blood tests to keep monitoring blood oxygen levels etc... Healthy eating with plenty of greens

January 2

Before Diagnosis, Did Any Of You Experience Dry Mouth Every Night And Notice A Bad Odor That Others Didn't Notice?

A myAIHAteam Member asked a question 💭
Kalama, WA
A myAIHAteam Member

I wonder if it's a symptom of the disease.

December 26, 2024

Hip Replacement With AIHA

A myAIHAteam Member asked a question 💭

Can Anyone Tell Me The Difference Between Auto Imune Heamalitic Warm . Mine Is Cold. Carole Ryder Cheshire England

A myAIHAteam Member asked a question 💭
cheshire england
A myAIHAteam Member

Mine is also cold and I have to keep warm. The cold weather makes you feel unwell

December 2, 2024

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

A myAIHAteam Member asked a question 💭
San Francisco, CA
A myAIHAteam Member

Tbh for holidays I like to buy fancier treats like raspberry and mango, payayas or things that are super healthy but expensive to have it daily. I would like to have a mix of fancier nuts mix like… read more

November 5, 2024

Do You Follow A Specific Diet To Help With AIHA?

A myAIHAteam Member asked a question 💭
San Francisco, CA
A myAIHAteam Member

I was fine until the cold weather started and I caught a heavy cold. My last reading showed improvement although my thyroxine levels have dropped so more blood tests and I continue to take folic acid… read more

7 days ago

What Exercise Regime Works Best For You?

A myAIHAteam Member asked a question 💭

I enjoy weight training but after each IV iron &/blood transfusion I only get a window of about 12 weeks before my HB, iron and ferritin drop too low do even walking up and down stairs let alone lifting. Looking for something to bridge the gap so I don't fall back to square one again every time.

A myAIHAteam Member

Thanks so much Lynda! I didn't think of Tai Chi! I can't do yoga bc of hypermobility / EDS but I think Tai Chi might be fine, thankyou! I love chair workouts, the chair weights ones a a real blessing… read more

October 1, 2024

Which AIHA Symptom Surprised You The Most?

A myAIHAteam Member asked a question 💭
San Francisco, CA
A myAIHAteam Member

I have experienced this, but have had like hit flashes.

October 12, 2024

What Are Your Top Tips For Dealing With AIHA In The Heat?

A myAIHAteam Member asked a question 💭
San Francisco, CA
A myAIHAteam Member

Living in QLD Australia. Sub tropical climate so 30C in summer with humidity means I can feel very unwell. So, I have got my aircon up and running and regularly serviced and use it in the middle of… read more

August 24, 2024
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