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Specific Types Of Anemia In Rheumatoid Pts.'s?
My Mom has full blown rheumatoid arthritis, Sjogren's, and other health issues including anemia. She has many 'ologists' including hematology and rheumatologist, but all they say is that her anemia they believe to be due to her autoimmune disease, but they don't call it by this specific name AIHA. She was already on Warfarin blood thinners due to A-Fib. She's been told that the R.A. has moved into systemic autoimmune. Mom declined bone marrow biopsy, which for her at age 87 with heart… read more
There is one bone marrow biopsy tray system which is supposed to be significantly better than all the others, but how do we get our physicians to stock it and use it? I will look up the name and link… read more
What Is A Common Treatment Protocol For Someone With Mixed AIHA?
I have recently learned that I have cold autoimmune hemolytic anemia as well as warm AIHA. Does treatment differ? I have been treated with prednisone, rituximab and am currently taking Azathioprine immunosuppressant. I would like to hear from anyone with a similar diagnosis. No end to the adventure🙈
I also am of the mixed up variety diagnose Jan 2023. 3 months on varying levels of steroids followed with 4 rituxin infusions one week apart. Last labs all was normal except for cold agglutinin level… read more
What's One Thing About AIHA You Feel Isn't Talked About Enough?
What tests should be given to a patient who has autoimmune anemia before having transfusion?
How can the blood transfusion be compatible for a patient with warm hemolytic anemia?
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Are Chest Pain And Shortness Of Breath Symptoms Of AIHA?
I have chest pain with my shortness of breath. I also have both warm and cold AHIA. Taking Prednisone since 1/10. Had first IV of Rituxin on Wed. 3 more, 1 a week. My hematologist has had good results… read more
WAIHA Friends! We Started A Weekly Zoom "Chat About" Where We "chat About" Everything WAIHA!
Tonight at 7PM (ET), though, Azreen Iqbal, one of our Patient Advisors, will share her recent experience with a splenectomy. (And, of course, I'll have more info regarding the Annual Patient Meeting in March!) To join us, you need to be a member of the wAIHA Warriors Private FB Group:-(Please answer the membership questions and agree to the rules, so we know you're a (human, not a bot) patient with wAIHA or a caregiver!) https://www.facebook.com/groups/waihawarriors
Then you can find the Chat… read more
A description of a member’s experience with a splenectomy would indeed be interesting
Although I appear to be healthy and responding very well to treatment for my WAIHA, my haematologist ruled out… read more
Anyone Contract A Bacterial Or Fungal Infection Due To Their Immunocompromised Condition.
What Do You Look Forward To Accomplishing In 2023?
Hmm, I don't know about that... Even though I've been a dedicated smoker all my life, I did make an attempt to stop, cold turkey, if that could somehow, miraculously, cure me. The result: I was… read more
Has Anyone Added Vitamins Or Supplements Into Your Daily Routine Along With Ur Meds? Wondering If Anything Helps.
Folic acid, calcium magnesium, Vitamin D3, B12, Biotin, multivitamin
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