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Ritux Hasnt Worked. Finished With Prednisone, I Hope. Azathioprine Not Helping…What Next? Discouraged.
You can try magnesium bisglycinate cuz I noticed it helped me, just a bit but it did. I also take iron to keep the leves of HG stable and in check. Plus folic acid. And 2 Prednisone pills. U can try… read more
What's The Most Important Thing You Learned About Living With AIHA This Past Year?
I was diagnosed in September 2022 with Cold Agglutinin Disease and AIHI. Rheumatoid Arthritis diagnosis a few years ago
I can relate to making choices of what I am able to do based on how I feel. I… read more
Are There Any Drugs Available To Raise My GFR Number From 14 To At Least 25?
Traveling For The Holidays? If So, Can You Share Your Favorite Travel Tips?
I generally avoid travelling during popular holidays. During these times, flights are more costly and also more limited. I’m retired so I have the luxury of picking and choosing which periods of… read more
Taking The Steriod Pill. Anyone Else Have Such Low Energy Taking The Prednisone?
Art:
Your above comment is both revealing and reassuring in terms of how long Prednisolone can be used for AIHA
I have taken a note of your other supplements and it’s certainly worth… read more
Can Anyone Tell Me Standard Protocol For Pre Transfusion Testing In Hospitals For Patients That Have Warm AIHA ?
Can anyone tell me what the protocol is for pre transfusion testing in hospitals for patients that have warm AIHA or any other autoimmune anemia?
Yes How Will You Help And The Study Cualification
How Do You Thank Your Family And Friends For Their Support?
I thank them for putting things into a positive perspective when I can't. Rooting me on to be my own advocate. Thanking them for accepting me for who I am and not what I have. It's been a rough… read more
Association Of AIHA With Solar Urticaria
Yesterday, a dermatologist told me I have “solar urticaria”, an immediate but temporary adverse skin reaction from exposure to direct sunlight.
Has anyone here had any experience with solar urticaria?
Mu mom had aiha over 20 years ago rhey gave her rounds of prednisolone and washwx blood transfusions. It dos not work
I askwd the dr if her spleen is sestrpying the red blooxd cells why dont ypu… read more
What Experience Have Members Here Had With The Use Of Oral Prednisolone?
How long have you been taking oral Prednisolone and at what dosage, Mg./day?
What does your schedule of decreasing dosage look like over time?
And what results have you achieved with the Prednisolone in terms of haemoglobin levels and overall wellness?
Any side effects?
Hi Wendy. I am happy for you. But you still have the AIHA ???
Wendy what is the CLL???? Please
Thx much.
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