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My Question For The Team: Has Anyone Here Had Any Actual Experience As A Recipient Of Rituximab Intravenous Infusion?
Last Spring and Summer, I was taking oral Prednisolone and later, due to that drug’s side effects, oral Medipred, (an analog of Prednisolone.)
In June, my haematologist suggested that I order Rituximab in the possible future event I suffer a relapse.
I did and I had it on hand in the refrigerator, 4 ampules, under a controlled temperature range of 02 to 08 degrees C.
As you know, Rituximab is a very serious drug given intravenously and only under strict, medical supervision
I was very… read more
Haptoglobin Levels
I had 4 doses of Rituximab 6 months ago. Now my blood work still shows decreased haptoglobin levels. Was/is anyone experiencing something similar? How long did it take for your haptoglobin to reach normal levels? Just so worried that this is a sign of ongoing hemolysis…
Has Anyone Here Tried Naturopathic Medicine To Control And/or Cure AIHA?
I have now logged about 14 months of traditional, allopathic treatment since my initial diagnosis of AIHA in February, 2022
The result has been favourable in that I progressed from a haemoglobin level of around 5.0 to close to 12, with major fluctuations in between, then and now
To be honest, I went from transfusions, Prednisolone to Metapred, to tapering off of all drugs completely last August and then back to transfusions last October and finally back to Prednisolone, all in the past 14… read more
So over time prednisolone can cause serious side effects because it is a steroid. So moon face, low levels of hormones, and destruction of antibodies and the immune system are the main issues. If your… read more
What Supplements Do You Recommend Please
Hi my husband was diagnosed September 2022 on his second round of Rituximab what supplements do you advice please he is currently on vitamin D and calcium
I agree with Art. I'm cramming down the 5 google said are take. Iron, B-12, Folate, Vit E & Vit D3. No zinc or vision supplement although good idea. I also take potassium and some multi vitamin power… read more
Has Anyone Had A Positive Result From Rituximab? I'm Scheduled For Late June Treatment. Anyone Had Bad Side Effects From Treatment?
I've had rituxan twice. This first time, and for a relapse. I'm experiencing a relapse and will do another round of rituxan. It has worked wonders for me. There is no cure for this disease. In… read more
Does Anyone Have Type 1 Diabetes As Well As AIHA.all Treatment Ie Steroids And Rituximal. Send My Blood Glucose Out Of Control.? Carole
Thanks corrie it's nice to think your not on your own
Carole
Rituxan
Anyone have experience with patient foundations or grants to help cover costs of Rituxan treatment. Thank you.
My provider contacted the drug company that makes Rituxan. I filled out a financial application and qualified to get it free. I had no insurance at the time. I'm on Medicare now which covers 80%. I… read more
What Is A Common Treatment Protocol For Someone With Mixed AIHA?
I have recently learned that I have cold autoimmune hemolytic anemia as well as warm AIHA. Does treatment differ? I have been treated with prednisone, rituximab and am currently taking Azathioprine immunosuppressant. I would like to hear from anyone with a similar diagnosis. No end to the adventure🙈
I also am of the mixed up variety diagnose Jan 2023. 3 months on varying levels of steroids followed with 4 rituxin infusions one week apart. Last labs all was normal except for cold agglutinin level… read more
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