Connect with others who understand.

Sign up Log in
About myAIHAteam
Powered By
Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Haptoglobin Levels

A myAIHAteam Member asked a question 💭
Zürich

I had 4 doses of Rituximab 6 months ago. Now my blood work still shows decreased haptoglobin levels. Was/is anyone experiencing something similar? How long did it take for your haptoglobin to reach normal levels? Just so worried that this is a sign of ongoing hemolysis…

January 29, 2024
View reactions
A myAIHAteam Member

the rituximab is not a magical answear to AIHA. you still have AIHA but the meds are keeping it under control. AIHA affects different indicators of blood tests. but u can try magnesium bysglicinate if you want cuz for me personally helped me, it improved HG levels by 0.8 points in two months but of course i had the other pills too to this like folic acid, iron pill and 2 pills of pred.
this is a serious disease and we should treat it as such and that means we cant expect a full remission after a round of rituximab.
i like that things are under control now but i dont expect a full remission from now on. i think i will have dis for all the times and i don't think i will get rid of it for good nless they come with some kind of miracle cure fro autoimmune diseases

January 17
A myAIHAteam Member

Thank you for your response Lynda! My haptoglobin levels are still low, but the other markers, including hemoglobin, have remained stable. My hematologist and professor mentioned that he has observed this in other patients as well. It could be a sign of residual hemolytic activity, which, with stable other markers, should not be a cause for concern.
How are you doing? Sending you a virtual hug if needed!

January 15
A myAIHAteam Member

I had Rituximab infusions back in 2021. I will not take Pred. My hemoglobin is ok still but Haptoglobin in the red still. My hematologist left the practice and no one there can/will tell me where he is now. My "new" hematologist doesn't seem to know or care to know why my Haptoglobin is low. Unfortunately our doctors here in LV NV are marginal, at best. I'm terrified all the time.

September 3, 2024
A myAIHAteam Member

Hi my husband had Rituximab a year ago have been only off steriods fir 3 months last year now back on steriods and Rituximab again tough journey

February 23, 2024

Related content

View All

When Was Your First Reoccurrence Of AIHA?

A myAIHAteam Member asked a question 💭
Auburn, CA

Hi Do You Have Any Experience Or Information About Long-term Use Of Morphine As A Medicine And The Effect On AIHA ( D59.1 )

A myAIHAteam Member asked a question 💭
nima1@suomi24.fi

I Have Been Recently Diagnosed With WAIHA And Also Liver Cirrhosis. Anyone Had Really High Levels Of Billirubin?

A myAIHAteam Member asked a question 💭

Already a Member? Log in