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What Lifestyle Changes Have You Made Since Becoming Diagnosed?
Knowing what to commit to and keeping things simple and flexible. Reducing stress is a big one for me. Working out at the gym with a 30-50 minute stationary bike and circuit weight lifting 12-20… read more
My Question For The Team: Has Anyone Here Had Any Actual Experience As A Recipient Of Rituximab Intravenous Infusion?
Last Spring and Summer, I was taking oral Prednisolone and later, due to that drug’s side effects, oral Medipred, (an analog of Prednisolone.)
In June, my haematologist suggested that I order Rituximab in the possible future event I suffer a relapse.
I did and I had it on hand in the refrigerator, 4 ampules, under a controlled temperature range of 02 to 08 degrees C.
As you know, Rituximab is a very serious drug given intravenously and only under strict, medical supervision
I was very… read more
What Advice Do You Have For Others About Managing Fatigue?
I understand the dynamics of participation in daily activities. A day’s overload can generate physical and psychological stress.
Fatigue would be a manifestation of that.
Are There Any Warm Autoimmune Hemolytic Anemia Patients In New Orleans?
God Bless all!
What Aspect Of AIHA Worries You The Most?
Interesting. 🤔. ….. My Chinese Malaysian haematologist is a senior member of the haematology staff at the hospital
He was highly recommended by a friend of mine here in Kuching. My friend… read more
What’s One Thing You Wish People Who Aren’t Living With AIHA Could Understand?
They need to understand that we aren't being lazy when we can't do the things we used to. Like go up steps, walking right after eating and need to rest durning the day
We aren't as able to go all day… read more
What Is Your Morning Routine?
I had to resign my position due to AIHA. Doctors appointments and symptoms made it difficult to do my job.
What Is Your Favorite Hobby?
I enjoy reading, often audio books these days. I meditate and participate in yoga at my community studio usually 5 or 6 days a week
I enjoy painting. This year I am revisiting water colour. I… read more
What Is Your Favorite Time Of Year And Why?
Coming to acceptance that you have a chronic condition is an emotional challenge. Truthfully, I am quite pissed off. Anger can easily slip into depression and that is a place I would rather not… read more
What Aspect Of AIHA Worries You The Most?
I stress about this as well. Without a doubt
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