What Phrase Or Mantra — Such As “This Too Shall Pass” — Do You Tell Yourself When Things Feel Tough?
If u worry pray, and if u pray don't worry , my grandma always told me this but sometimes it's easier said than done
Anemia
I have sever anemia. I. Had. To. Have a blood transfusion
. 2 years. Ago. They. Say. My. Body ain't. Producing enough red blood. Cells what. Do. I. Do
See an oncologist. They really helped me a lot with getting my blood levels up and they still fall but nothing like before to get back in hospital.
Who In Your Life Best Understands How Having An AIHA Affects You, And How Do They Support You?
I don't really know how to explain it so I don't talk about it to anyone
On A Day When Symptoms Bother You, How Do You Find Relief?
I cant
What Advice Do You Have For Someone Newly Diagnosed With AIHA?
I would sit down with them and answer their questions. Knowledge and understanding will lessen the anxiety.
What Advice Do You Have For Others About Managing Fatigue?
I try my hardest more than anything else day to day to try to get a small answer that shines with hope and hit a brickwall each day. I can be discouraging
What Creative Tips Or Tricks Do You Have, Big Or Small, That Make Your Everyday Life Easier?
Make decisions each morning about the days activities based on how your night went. Did you sleep well? If not, then be kind to yourself that day. Careful self care.
What Do You Wish Your Doctor And You Had More Time To Discuss?
Long term outcomes. Nobody really knows. Each person is on a very individualized journey.
How Has AIHA Changed Your Day-to-day Life?
I have to plan my activities with care. Do I go to yoga today or do I vacuum the floors, both are not an option. Do I walk this hill with the dog, or do I take the flat path? If I take the hill… read more
How Has Your Journey With AIHA Impacted You Emotionally?
Extremely tired pained and fatigued someday preferred deal with pain over fatigue and some days vice versa. It's causes extreme depression, anxiety and loss of hope. Makes me feel crazy and… read more