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Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What's One Natural Remedy That's Helped In Managing Your AIHA?

A myAIHAteam Member asked a question 💭
San Francisco, CA
August 21, 2023
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A myAIHAteam Member

There's nothing that helps in managing AIHA OR AIHAITP besides REAl medicine sorry the protocol right now is IGG and or rotuxin and or prednisone. These medicines are damaging but your immune system destroying your blood cells will kill you. You can take vitamin B to help with energy, you can take collagen supplements to help with pain but there's nothing that manages the condition naturally. No matter what the latest naturalist is trying to push 29 years of living this condition has taught me.

August 22, 2023
A myAIHAteam Member

I am not a Naturopath.I am an Engineer trained to apply science and Biochhemistry using Genetics for Precision Healthcare,the most advacedt.I use Pubmed Database and enter AIHI,PNP,SCID and MTHFR-1.I was able to diagnose myself with AIHI.I have MTHFR-1,SCID and PNP Genetics.PNP is a cause of Severe Combined Immune Deficiency,SCIDChronuc Fatigue and Autoimmune Disorders.My AIHI was triggered by Sulfur Drugs due to G6PD Deficiency,so I use a Natural Treatment.The Herb Cat's Claw is for treating Autoimmune Disorders,Skin Problems,Lyme Disease Candida and GI Issues During COVID,60% of Americans used Food Supplements to reduce infection risk.Everyone should learn about their health as Pubmed has information for all condjtions,5-15 years before drugs are approved,so being self health aware can save,or prolong life.This has been my experience, especially for Genetic,Chronic and Aging Conditions.😊🇨🇦

December 9, 2023
A myAIHAteam Member

You can disagree all you want but if it wasn't for the drugs I'd be dead and so would entire cohorts of patients. I'm so sick of people trying to push naturopathy as a cure it definitely can help in managing symptoms but there's a reason it took 50 years to find a treatment for this fatal condition and why every single person with it died before they had a protocol treatment

August 27, 2023
A myAIHAteam Member

I used to have those round spots on lower legs.They are from Cold Autoimmune Hemolytic Anemia.My Sister had the same thing,which is why I feel genetics is a factor.They are due to sticky platelets as a result of damage to their outer surface.Similarily,Red and white cells get damaged. causing AIHI,and Neutropenia.,which can lead to lung immune dysfunction and eventually Sepsis.Both me and .my Sister had this.It is the most common condition in ICU,with cause not known.I feel your Aplastic Anemia was AIHI.You may want to be tested for MTHFR-1,which is in our Family.Keep up your detective work.I take Samento,a pure Cats Claw which treats Candidalysine,which I feel causes damage to cell membranes and AIHI Low blood white cells,Red Cells and Platelets are due to AiHi and cause Fatigue,heavy bleeding and immune dysfunction.Fred

October 27
A myAIHAteam Member

Once again, thank you, Fred. I have small round brown scars one on each lower leg. I thought they were from an insect bite but never remembered getting bitten. You say to see an Immunologist? I wonder why I was never told to see one....boy, that's actually common sense. I've been seeing only oncologist/hematologist as my diagnosis came after 2 bouts with breast cancer (may or may not have caused) also have had Hashimotos since 1993, and took a Sulfa drug that I gave me a severe allergic reaction.

September 3

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