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Real members of myAIHAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Has Your Journey With AIHA Impacted You Emotionally?

A myAIHAteam Member asked a question 💭
San Francisco, CA
June 15, 2022
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A myAIHAteam Member

Keep your head up , your not alone,lots of us care and will continue to pray for u always, thank you for sharing and for all your support, you are helping me and others more than you know , 🤗

November 1, 2022
A myAIHAteam Member

Extremely tired pained and fatigued someday preferred deal with pain over fatigue and some days vice versa. It's causes extreme depression, anxiety and loss of hope. Makes me feel crazy and delusional by the way others look at me and perceive me. Weather they react bluntly or react where they think I don't notice. My mother told me on my birthday this last year that I'm mental and this is all in my head. Even after showing lab,meds, and diagnosis. It's making me want to hide from the world.
On another note I just remembered you asked what kind of treatment and I explained but I forgot to mention that I take hydroxycloroquine from my rheumatoid specialist and blood work every so often. From my pcp I take duloxitin for my fibro. And I take baby aspirin clopidogrel for my vascular disease and for my phych I take Vyvanse for adhd clonazopam anxiety and panic attacks and as if right now all they can do when my organs swell on the right side Is give me a shot of steroid and lidocaine. Everything is up in the air. I have to switch a dr and I'm also on pain management waitilist. I feel horrible because aside from all my pain and issues on top, I am only allowed to take up to 3000mg of Tylenol a day because of the blood thinners. They act as if they don't want to treat me. I don't understand

November 28, 2022
A myAIHAteam Member

JoAnne,
So sorry to hear about your "covid" problem! Our oldest son didn't have heart problems until he took the first two shots, thank god he is getting along okay now. Those shots are not good for anyone especially if you have under lieing problems, it destroys your immune system not help it, my opinion.
Happy Thanksgiving to you and your family.
Pat Fox

November 23, 2022
A myAIHAteam Member

I'm tired all the time

November 1, 2022
A myAIHAteam Member

I have dealt with two bouts of cancers and recovered quite successfully, I was feeling WONDERFUL, full of energy, down to a healthy body weight , travelling and just very well and active. Then I had the COVID vaccines that triggered AIHA. I am so, so very annoyed and discouraged. I know life isn’t fair….but really…..this is just not fair!

August 29, 2022

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