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How Do You Help The Teen These Days
Does Someone Have Crohns Or UC?
I think my Crohns/UC triggers caused/triggers my AIHA
I had colon surgery in April 2022. I got AIHA in September 2022. Went for colonoscopy in July 2023 was diagnosed with ulcerative colitis never had it before the surgery. I think the colitis caused… read more
Do You Feel Your Day Is Better When You Have At Least Two Orgasms Today?
1
In What Ways, If Any, Has Your AIHA Affected How You Consume Alcohol?
I very occasionally have wine 🍷 or champagne 🍾 but it’s always in very small quantity.
Generally speaking, I would recommend steering clear of alcoholic beverages while taking Prednisolone.
Has Anyone Here Tried Naturopathic Medicine To Control And/or Cure AIHA?
I have now logged about 14 months of traditional, allopathic treatment since my initial diagnosis of AIHA in February, 2022
The result has been favourable in that I progressed from a haemoglobin level of around 5.0 to close to 12, with major fluctuations in between, then and now
To be honest, I went from transfusions, Prednisolone to Metapred, to tapering off of all drugs completely last August and then back to transfusions last October and finally back to Prednisolone, all in the past 14… read more
So over time prednisolone can cause serious side effects because it is a steroid. So moon face, low levels of hormones, and destruction of antibodies and the immune system are the main issues. If your… read more
Has Anyone Had A Positive Result From Rituximab? I'm Scheduled For Late June Treatment. Anyone Had Bad Side Effects From Treatment?
I've had rituxan twice. This first time, and for a relapse. I'm experiencing a relapse and will do another round of rituxan. It has worked wonders for me. There is no cure for this disease. In… read more
Where Do You All Live
Lafayette La
What New Life Hacks Have You Learned To Manage Your Life With AIHA?
This all plays into the logic of understanding our own parameters of ability. My exercise of choice is swimming. There is minimal risk of injury
But any exercise that raises the heart and… read more
If I Received So Many Transfusions. Will I Have To Continue To Get?
hi Shana, what has been your hemoglobin level? For me, that has been the key value related to transfusions.
Which Blood Test Tells Us That It Is This AIHA?
When we know that we have anemia, but we don't know which type....which blood test tells us that it is this AIHA?
My Mom and I are both anemic. Hers is due to autoimmune disease inflammation.
I don't yet know why I am anemic.
The blood test that confirms AIHA is the Coombs test. A hematoligist will know that.
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