I Would Like To Know Others Treatments And How Well They Worked For Them And How You Manage Living With Hemolytic Anemia, What Has Helped Y
On prednisone and weening off.
I am on Prednisone now. I have also folic acid, iron. I found that magnesium bisglycinate helps to slow aiha a little bit. One pill of magnesium per day. I am eating lots of fruit and veggies. I am stable for now. It's been a year since I discovered (the doctor discovered, not me obviously) this but I am fine now.
Advice that I can give you is to do blood screening every month to be sure and safe
My hematologist told me that I have plenty of iron, so don't need to take any. But I do take folic acid and b-12 and b complex.
I also get folic acid with iron.
So first they tried iron tablets but no luck. Then I had a combo of immune suppressants and steroids. Now they are just testing my blood every 2 weeks and giving me serum iron/ blood transfusion as and when I need it (which is pretty much ever 3 months). Waiting to see a rheumatologist who my gp says might be able to do more to help.
Has Anyone Had Any Experience With Using "Low Dose Naltrexone" Aka LDN To Deal With Warm Autoimmune Hemolytic Anemia?
What Is A Common Treatment Protocol For Someone With Mixed AIHA?
Which Blood Test Tells Us That It Is This AIHA?