My son likely has it: as I understand it Evan’s Syndrome is more of a label for those who experience a cluster of different autoimmune blood disorders than it is a specific disease in and of itself. He was first diagnosed with ITP (around age 18, although there were unexplained bloodwork issues at ages 10 and 14) but later also experienced neutropenia episodes and most recently and for the first time AIHA (he’s 33). A stressful, scary roller coaster (especially at first). No cure, but successful treatments and remission periods, so it becomes far less scary. And new medicines too. Good luck—remain hopeful and find hematologist/oncologists you trust.

So very sorry he has had issues at such a young age. Praying for a full recovery x

Hi MariaBeecham
May God be with him and cure him and so young to be with this desease. And God be with you also.

Thanks. He’s doing great now. Rituxan worked and he’s off the Prednisone. It’s a roller coaster but a less frightening one over time. Good luck with your son’s challenge as well!

So sorry to hear this. Hopefully condition improves